Caught a cold from E in December (I think it was him, since I don’t go out much and he was over for Christmas and seemed sick) which turned into bronchitis. Luckily it eventually went away on it’s own but I was still sick on my birthday so I removed it from Facebook; therefore I only got a few birthday wishes because if FB doesn’t remind people they completely overlook it. I’m guilty of the same thing so I wasn’t even sad about it. I feel too much like shit to even care about the holidays or my birthday. We didn’t celebrate it and I told everyone not to get me any presents because it’s irrelevant at this point. Without my health I am nothing.
The physical therapy doesn’t seem to be helping and we’ve tried exercises, massage, trigger point release, and dry needling. Trigger point injections at the pain clinic would help a bit, but it’s reached the point where I don’t even know what to have them inject, so I cancelled the appointment. Kinda regretting it now that the pain while sleeping has increased.
I saw a naturopath my PT suggested and she just put me on some new supplements. Only been taking them for a bit less than a week and haven’t seen any changes. Still horrible pains in my arms while sleeping that are creeping down into my upper back now. Also the head pain is coming back. I’m also getting twitching in my muscles, mostly calves at the moment. My feet often burn mostly at night and then for the first few hours I’m awake. The tinnitus is slowly getting louder, and my ear is once again fluttering in response to toilet noise (and this keyboard right now for some reason). WTF?!? Oh, and when I look at purely white things I see some traces of yellow/green color ever so subtly.
I’m starting to suspect I might have Lyme disease. I just realized the tests I got through Quest that I thought were western blots were actually ELISA as they only proceed with a blot if the ELISA indicates infection. F me! I might have to pay a bunch of money out of pocket to get testing through a more thorough lab that insurance doesn’t cover. I’ve been doing SO much research on this stuff and there’s so many conflicting theories and different treatment protocols that it makes me sick to my stomach to even think about it. Honestly, suicide sounds much easier. I know, such a defeatist attitude. But I can’t handle all this. It’s just too much. I haven’t felt well in over nine months and nothing has indicated to me that this will be getting better anytime soon. I feel my “best” at night and work on thinking positive thoughts and visualizing myself getting well but it isn’t helping, at least not yet. It’s so depressing.
I don’t feel like Joe and I are partners anymore. He’s my caretaker because I don’t have the energy to take care of myself. I am down to 100 lbs and I hate food because everything I eat is supposedly inflammatory so I’m limited to meats, fruits, and veggies, although I do eat rice just to keep my calories for the day over 1200. I hate my entire existence and long so deeply to go back to how I felt before, even with my little weird annoying health issues. At least they weren’t disabling like this! After all this time I’m still struggling to wrap my head around what’s happening to me. It’s like a waking nightmare.
I’m just so sad that at the age of 44 this is what my life is like. I can only hope SOMETHING eventually helps.